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JUST WEEKS AWAY – 6th INTERNATIONAL FIBROMYALGIA CONFERENCE 2015

If you have not booked for our 6th  international Fibromyalgia Conference on April 24/27 2015, at Chichester Park Hotel,  it is not too late but  do not waste time. We have a lot of interest. The hotline to book  0844 887 2512.

Once again the cost is as low as we can make it to enable folks to enjoy the education, research news, make new friends, as well as entertainment, fun and laughter. You will have a chance to talk to the speakers personally 1-2-1 – almost a private consultation as part of the conference weekend and you will be among folk who understand your aches and pains. It has been said, “Conference is a great educational and life changing experience”. We aim to please.

If finding the fee is a stumbling block, you could make payment by using your credit card. Why not add it to your Tesco shopping credit card  as a “lend” and pay off a little each month. Paypal will accept  credit cards with an additional 4% charge. If you need help with the process please ask.

When folks talk about fibromyalgia there are several symptoms most of us suffer and  live with. This includes pain 24/7, chronic fatigue, sleeplessness, cognitive behaviour, IBS, morning stiffness,  depression and many more. This conference our experts will be highlighting some of these symptoms. With a wide and varied programme around the main FM symptoms, we are aiming to help with interesting speakers from the USA, Canada, Australia and the UK.

Iris Weverman, a registered physiotherapist from Canada who specialises in FM, will talk  about chronic fatigue, stiffness and exercise  for fibromyalgia. In her second talk she will discuss trigger points versus tender points … not to be missed.

Dr. Nick Read,  a gastroenterologist psychoanalytical psychotherapist, human nutritionist, interested in FM, will talk about his active involvement in the IBS Network , and integrated medicine.  As a nutritionist we are hoping he will give us a recommended diet for those with IBS.

Andrew Pothecary, a specialist pharmacist in Rheumatology & Biologics at the Royal Cornwall Hospitals NHS Trust, will be  lecturing at The Clinical Pharmacy Congress on the Future of Clinical Pharmacy in London on the Friday. As an old friend, he has agreed to stop over and talk to us on Saturday. We hope to learn more about the medications that our GPs prescribe for fibromites  pains.

Afifah Hamilton, MNIMH Cert Phyt ITEC, GAP practitioner and nutritionist, is an alternative medical practitioner who uses herbal remedies for wellbeing. Afifah is medically trained and a specialist in physical, psychological and conventional treatments with herbal options. She will be discussing sleeplessness  among other symptoms. If you are prone to too  many drugs, you should not miss this presentation.

An American lady with fibromyalgia and a great reputation, will be with us to talk about her commitment for FM. We hope she will include news of research, life with FM in the States and living with fibromyalgia. Jan Chambers is President of the USA National  Fibromyalgia & Chronic Pain Association, founder of the Centre of Understanding, Research and Education of Fibromyalgia (CURE FM) and co-founder of the NFA Leaders Coalition, Executive Committee. Married for 35 years and the mother of 5 children, Jan has had a roller coaster ride with fibromyalgia since 2005. Her background really makes interesting reading and will save a lot of questions if you are coming to conference. This is a lady who commands my highest respect and I am honoured she has agreed to visit us. Try http://www.fmcpaware.org/jan-chambers. “I’ve got my life back, and I love every minute of it” she said.

Another interesting speaker with big claims is Philip Rafferty. Born in the UK he lives  in Australia and travels the world. A specialist in fibromyalgia, chronic pain and CFS he is a kinesiology ‘wizard’. He claims the corrections he teaches fibromites keeps them out of fight/flight/ freeze/survival. What he does he says is different to anything else. He  claims he achieves instant dramatic pain reduction. This I  must see!

We are again pleased to welcome Wes and John with the Benefits & Debt Clinic which will be operating Friday afternoon from 3.15pm. Look at their website – for debt and benefits http://frontlinedebtadvice.org.uk/ – you might find it interesting.

As usual there will also be other attractions. On Friday evening we have the film premier of the documentary movie made at FM Conference 2014. Called ‘Focus on Fibromyalgia’ it includes consultants’ comments as well as the views of those who live with this condition. Be sure to see the film as it is a movie you should not miss. Lasting 65 minutes, it is full of information and you will need to go back and back again to the film to see what you missed. Copies of the film will be available to purchase with a donation from sales  to fibro research.

THERE IS MORE

Jen Lee is back with us again for some light relief and with more Belly Dancing steps to learn. We hope to have all doctors on stage Sunday afternoon for discussions and questions. Do not forget the fun auction of wine and other gifts donated by delegates on Monday morning.

Simon Stuart, a leading member of the FibCon team, who works in the medical profession with the elderly, will be giving a talk about Alzheimers – a hot topic at present. You will also meet Nicki Southwell this time. A name some will know, Nicki has been working with Simon and I for several months as Assistant Co-ordinator. We were sorry to lose Teresa White towards the end of last year, due to her health problems. We understand she is on the mend but taking things slowly. We have a great team of helpers this year who will be wearing their pink badges and should be able to help delegates and answer questions.

To join us for some worthwhile education, fun, laughter,  email Simon Stuart at fibcon2015bookings@gmail.com to check availability and book or ring the HOT LINE 0844 887 2512  to book or email jeanne@follypogsfibro.org. to reserve a room and get a booking form.

This conference will be an action packed weekend as usual – Friday to Monday –from April 24th  to 27th  2015 at Chichester Park Hotel, plus evening entertainment, all included for £220 per person sharing double room – just £55 a day all found. This covers the cost of  food, accommodation,  the conference and entertainment. There are no single bookings now only a waiting list. The food is good and the staff are very helpful. The hotel has an indoor pool, jacuzzi, spa and some  exercise equipment for use of our visitors.

STOP PRESS –  We have been offered  a trial run of the new and exciting ActiPatch. We have a patch for each delegate to try.  If it works for you Boots sell the patches which  I believe is  a forerunner of a Electromagnetic Pulse Therapy device which provide 90 hours of 8 hour treatments (720 hours). We only have patches.

ActiPatch is said to be a highly effective therapy by chronic pain individuals and trials have increased purchases. This reflects the result of the reported benefits of clinically significant and sustained decreases in chronic pain, large improvements in quality of life, and decreases in the reliance of analgesic pain medications including opioid based drugs. We have had news from an American FM group where members used the patch and are excited about it. There is only have a limited number of patches for FM delegates only.

Finally it is worth mentioning the weekend conferences are sponsored by Folly Pogs Fibromyalgia Research. Every booking makes a contribution to fibromyalgia research and the raffle and other paid items contribute to FM research. No one gets paid except the bills. We survive under The Old Pal Act 1845. We beg and borrow to make ends meet.

There is always someone to  talk to at conference if you come alone. You will soon make new friends and meet others at our Friday ‘onesie’ meeting for those who are alone.

We hope it will be another smash hit conference with entertainment, fun and laughter with educational and helpful tips. For more information about this and the last conference  –  see http://fibromyalgiaconference.weebly.com. Hope to see you at conference. Jeanne

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