First a BIG thanks to WordPress for allowing me to have this Weblog. Just hope I remember how to get back to it soon. It is a great opportunity and very much appeciated. Also I must mention my dear friend Richard Usher from Canada and FMS Global News, for telling me about it. Ten Brownie Points Richard. I feel sure you will read this.
So now you know I have an interested on FM – or fibromyalgia for those who do not know what FM is. To be brief is it includes aching and pains for Britain – like there is no tomorrow – shocking awful chronic fatigue – cannot sleep – in a flight or fright situation – and fibro fog (brain fade or cognitive problems) plus, plus and even more pluses.
I walk from one room to another and forget what I went for… and yes it is fibro fog and nothing to do with being senile… that might happen when I am 109 but I am only 108, so wait for it. AND my 20 fibro fingers have a mind of their own. They type what they want – not what I am hoping will go on the page. Strangely enough there is usually a clue to the right word in the first letter of the rogue word…funny but worying. Maybe I have written to you as “ear George”. Bet your thought silly woman. Talking about spelling you might enjoy the following…. maybe I should have let all the real fibro fog errors to give you a belly laugh….
SLELPNIG IS SO IPMOATRNT
I cdnuolt blveiee taht i cluod aulaclty uesdnatnrd waht i was rdanieg. The phaonmneal pweor of the hmuan mind. Aoccdrnig to a rscheearch taem at Cmabrigde Uinervtisy, it deosn’t mttaer in waht oredr the ltteers in a wrod are, the olny iprmoatnt tihng is taht the frist and lsat ltteer be in the rghit pclae. The rset can be a taotl mses and you can sitll raed it wouthit a porbelm. Tihs is bcuseae the huamn mnid deos not raed ervey lteter by istlef, but the wrod as a wlohe. Such a cdonition is arppoiately cllaed Typoglycemia :)- Amzanig hug? Yaeh and yuo awlyas thought slpeling was ipmorantt. Hpoe you can raed fboiryamglia!
If you decide to write to a friend in what might be termed as fibromite foggy writing, please do not rearrange any words with two or three letters or the reader really will not understand.
To get back to the E Petitions, here in the UK we have the opportunity to “allegedly” writing to our new Prime Minister, the Rt. Hon. Gordon Grown MP by posting a petition on the No.10 Downing Sreet website. Whether he actually reads it is beyond me. I can only guess.
Go on Mr. Brown – make my day – prove me wrong! Say ‘yes’ to everything and make me look silly – I should cocoa.
Why have I written an E Petition? I was pig sick of people saying to me, “Fibro what?” when I told them what my problem was. No-one seemed to know what it as, meant or what it was like.
So I decided to do my own pointed petition to keep fibromyalgia in the public eye and to help raise awareness. I also wanted to jolly the Government up to provide money for research to find a cure. We live with the pain for the rest of our lives and we also need to find a quick diagnosis – it can take up to 10 years to be told you will not die from fibromyalga unless something else attacks your already compromised immune system.
As a matter of interest fibromyalgia can affect super mums, high achievers, perfectonists – sounds familiar – one of the main triggers is stress overload. I felt the same when I read that statement and thought it could be me – and it was. B u I had to ppay a specialist to find that out. Men and children can also have fibromyalgia. We believe that 10% of the popllation are living with undiagnosedfibromyalgia believing it to be old age, over work, or pressure. Blood tests show no marker. X-rays and scans reveal no inflammation where it hurts and fibromyalgia pains travel around the body – even to a pain in the butt. You can laugh. I was standing everyhere I went. I endured that pain when in the car. My husband complained about me fidgeting. Months later I read you can have a pain in the butt with fibromyalgia. So I was right after all..so there.
But for a moment just think about the high cost (in facts thousands and thouans of pounds if not more) all those fibromites’ blood tests, x-rays, scans, staffing, specialists, doctors, correspondence etc. must have cost the National Health Service. Surely it would be better sense financiallly to find a diagnosis and a cure through research? There is currently no UK government funding for FM research and no much in the privae sector.
I have been researching fibromyalgia since 2002 when I was diagnosed and I could tell you about anti-oxidants, free radicals, Lyme disease, lupus, TMJ (jaw pain) but I would not want to bore you to death or have you dropping off to sleep befoe you have ead the punchline. Fibromyalgia will cohabit with all sorts of nasties – too numerous to mention.
No I do not want your sympthany – thanks – I want your support for my petition. It will only take a minute to sign but I need at least 1000 signatures before No.10 will even consider my E Petition. Please do your bit and log on.
I have had an email from No.10 – shown below – saying they have accepted my E Petition and listing the website.
Subject: Confirm your new petition to the Prime Minister – ‘allocate funds to help FIBROMYALGIA with research,
finding a cure and raising awareness.’
Date: 21 July 2007 16:22:21 BDT
Your petition reads:
We the undersigned petition the Prime Minister to allocate
funds to help FIBROMYALGIA with research, finding a cure and
We implore the new PRIME MINISTER to listen to those suffering
with fibromyalgia, for which there is NO CURE, and provide
financial help to help them survive – (as the Government has
for ME). Who else can we ask for help?
Thank you for submitting your petition.
So it is down to you kiddo – I look forward to reading your name and, in anticipation as they say, thanks for your support.
Will write again soon. Hooray for Woodpress. Wonder if I will get pubished in India?
Next time I will tell you all about the new book I am editing and writing all about fibromyalgia and stress. If you have any comments or need information about FM Support Groups do write me.