FOLLY POGS IS ALIVE AND WELL

Hi Folks
Apologies for my absence – life is so hectic hardly time to even contemplate. Contemplate what I have not thought about.

But The Folly Pogs Fibromyalgia Research UK is on the verge of getting that illusive registered number – you know what I am talking about – the Charity Commission number (if they will have us with this silly but memorable name).

A Canadian website even called us “The Folly Pogs of England”….food for thought.

We are at last within reach of the ultimate bank balance to satisfy the “CC” with thanks to those who have made donations ‘quietly’ but in the hope we will achieve great things. We are trying to move mountains slowly but walking on water needs skill.

Our latest donor is a man called Rick Prior whose wife Karen is a fibromite. This lovely lady and her very supportive family have organised raffles and Rick and his son Mark ran in the Great South Run in Portsmouth in October. His sponsors with Karen and Maisie, her daughter, shook their collecting bucket on the day. Their efforts look like raising £500 – the sum we needed to for us to legitimately apply for registration. They had great fun and I am waiting for photographs of the runners with orange and blue hair. I will then have to learn how to upload. Watch this space

A big big thanks to the Prior family and others who have made all important donations in the past. Thanks for believing in us.

My friends will know I am passionate about raising funds for research to find a cure. There is no Government funding and unlikely there will be any in the foreseeable future. I believe we all really want a cure if only for the next generation –our children and grandchildren.

Our next big fund raiser is the 3rd annual Fibromyalgia Conference during Easter weekend in Chichester. If you want more details –email fibrowhat@me.com

These are memorable weekends, great for networking and making new fibro friends and talking to the experts. This one will be different with Olympic ‘style’ challenges including one for ‘knitting’ – yes knitting – that knit one, purl one, pastime you do with two knitting needles and wool – and another for that VIP Fibro Duck.

If you want to come and listen to 12 keynote speakers, we enjoy the unusual workshops, fun and laughter in the evening, better book soon – not many beds left.

Talk again soon – I promise -honest engine
Jeanne – Folly Pogs

WE WAS BRUNG UP PROPER !!

Thoughts from Jeanne Hambleton

Hooray for Antony Barton who had foresight to pass this onto 45 other people until it finally reached my dear friend Lynne. Thanks Lynne for keeping me in the loop.

Yes I am one of these kids and really proud of it. I think my Mum and Dad did a great job … well I would, wouldn’t I? I might have fibromyalgia now but I had a great childhood in the country – climbing trees, roaming the fields with Blackie, the black lab, (he was our guardian)  picking crab apples,  hazelnuts, cob nuts,  gathering wild flowers,  masses of bluebells, building hideaways, scrumping, and wearing those dreadful thick navy fleecy gym knickers. I wanted to hide at gym time.

Just think of  all that fun and excitement the children of today are missing, glued to their computers, mobile phones and electric games –   bombarded with rays that does no good.  If as I read in the newspapers,  a mobile  phone can allegedly  ’boil’ an adult brain, what must it do to a child’s young brain.

We played with marbles and gobs (five stones) in the gutter and learned our arithmetic. We forgot to wash our hands after playing on the floor.  We ate unwashed apples, raw carrots and loved tomatoes.

I am sure all that made me a more balanced person as well as healthier, out in the fresh air and  burning up energy all the time.  I was a skinny kid.  I would not change my happy childhood days and my love of my family and parents  for anything.

 My interesting email reads: We are all of a generation that we can all relate to the following…….

 

“And we never had a whole Mars bar until 1993″!!! 

CONGRATULATIONS TO ALL WHO WERE BORN IN THE

1930′s 1940′s, 50′s, 60′s and 70′s

 

First, we survived being born to mothers who smoked and/or drank while they carried us and lived in houses made of asbestos.

 

They took aspirin, ate blue cheese, raw egg products, loads of bacon and processed meat, tuna from a can, and didn’t get tested for diabetes or cervical cancer.

 

Then after that trauma, our baby cots were covered with bright coloured lead-based paints.

We had no childproof lids on medicine bottles, doors or cabinets and when we rode our bikes, we had no helmets or shoes, not to mention, the risks we took hitchhiking.

 

As children, we would ride in cars with no seat belts or air bags.

 

We drank water from the garden hose and NOT from a bottle.

Take away food was limited to fish and chips, no pizza shops, McDonalds , KFC, Subway or Nandos.

Even though all the shops closed at 6.00pm and didn’t open on the weekends, somehow we didn’t starve to death!

 

We shared one soft drink with four friends, from one bottle and NO ONE actually died from this.

We could collect old drink bottles and cash them in at the corner store and buy Toffees, Gob stoppers, Bubble Gum and some bangers to blow up frogs with.

 

We ate cupcakes, white bread and real butter and drank soft drinks with sugar in it, but we weren’t overweight because……

 

WE WERE ALWAYS OUTSIDE PLAYING!!

 

We would leave home in the morning and play all day, as long as we were back when the street lights came on.

 

No one was able to reach us all day. And we were O.K. 

We would spend hours building our go-carts out of old prams and then ride down the hill, only to find out we forgot the brakes. We built tree houses and dens and played in river beds with matchbox cars.

We did not have Playstations, Nintendo Wii , X-boxes, no video games at all, no 999 channels on SKY ,no video/dvd films, no mobile phones, no personal computers, no Internet or Internet chat rooms…….

WE HAD FRIENDS and we went outside and found them!

We fell out of trees, got cut, broke bones and teeth and there were no Lawsuits from these accidents.

Only girls had pierced ears!

We ate worms and mud pies made from dirt, and the worms did not live in us forever.

You could only buy Easter Eggs and Hot Cross Buns at Easter time…

 

We were given air guns and catapults for our 10th birthdays.

 

We rode bikes or walked to a friend’s house and knocked on the door or rang the bell, or just yelled for them!

Mum didn’t have to go to work to help dad make ends meet!

FOOTBALL and CRICKET had try outs and not everyone made the team. Those who didn’t had to learn to deal with disappointment. Imagine that!! Getting into the team was based on MERIT.

Our teachers used to hit us with canes and gym shoes. Bully’s always

ruled the playground at school.

The idea of a parent bailing us out if we broke the law was unheard of.

They actually sided with the law!

Our parents didn’t invent stupid names for their kids like ‘Kiora’ and ‘Blade’ and ‘Ridge’ and ‘Vanilla’ .

 

We had freedom, failure, success and responsibility, and we learned HOW TO DEAL WITH IT ALL !

 

And YOU are one of them!  CONGRATULATIONS!

 

You might want to share this with others who have had the luck to grow up as kids, before the lawyers and the government regulated our lives for our own good.

 

And while you are at it, forward it to your kids so they will know how brave their parents were.

PS -The big type is because your eyes are not too good at your age anymore …..no offence !

THE GREEN THINGY – should be compulsory reading!

From Jeanne Hambleton with fibro hugs

This morning I received this email as recommended reading.  Do hope I am not in breach of anything but it really is an eye opener.  I had not realised quite how much our living patterns had changed. Now I think is it any wonder  that we are ill, poisoning ourselves with insecticides, chemicals, preservatives, radiation. There is a lot to be said for living in the ‘slow lane’ and what has always  been  described as ‘the good life’.

Think I might go and dig up the lawn and grow a few vegetables.Oh I know  it is too late fo this year. There is always something.

But please read this whatever your age. If you are young it will give you an insight about how your folks and grandparents lived – when  Dad earned £2 .10s. a week or less  to  feed the kids, pay the rent, buy some coal not to mention clothes for the family. There was no money for holidays.  I remember my grand dad   methodically tearing up  old newspapers onto small squares, piercing a hole in one corner, threading string  in the hole and placing in the only toilet –  outside.  That was not for reading either. I guess it must have left an impression on us as in those days the newsprint seemed to rub off and you had black hands – not sure about your bottom.  Maybe that is why as kids we  wore navy gym knickers – what passion killers they were with your hankie stuck up your knicker leg.  I just do not remember having pockets as a kid – I wonder why – more materials,more cost probably.

THE GREEN THINGY

At the till, in the supermarket, the cashier told an older woman that she
should bring her own grocery bags because plastic bags weren’t good for
the environment. The woman apologized to him and explained, “We didn’t
have the ‘green thing’ back in my day.”

The clerk responded, “That’s our problem today; your generation
did not care enough to save our environment.”

He was right, that generation didn’t have the green thing in its day.

Back then, they returned their milk bottles, soda bottles and beer
bottles. They were sent back to the plant to be
washed and sterilized and refilled, so the same bottles could be used
over and over. So they really were recycled.

But they didn’t have the green thing back in that customer’s day.

In her day, they walked up stairs, because they didn’t have an
escalator or elevator in every store and office building. They walked to the
shops and didn’t climb into a 300-horsepower machine every time
they had to go a few hundred yards.

But she was right. They didn’t have the green thing in her day.

Back then, they washed the baby’s nappies because they didn’t have the
throw-away kind. They dried clothes on a line, not in an energy
gobbling machine burning up 220 volts – wind and solar power really did
dry the clothes. Kids got hand-me-down clothes from their brothers or
sisters, not always brand-new clothing.

But that old lady is right, they didn’t have the green thing back in
her day.

Back then, they had one TV, or radio, in the house – not a TV in every
room. And the TV had a small screen the size of a handkerchief, not a
screen the size of the Isle of Wight. In the kitchen, they blended
and stirred by hand because they didn’t have electric machines to do
everything for them. When they packaged a fragile item to send in the
mail, they used a wadded up old newspaper to cushion it, not styrofoam
or plastic bubble wrap.

Back then, they didn’t fire up an engine and burn petrol just to cut
the lawn. They used a push mower that ran on human power. They
exercised by working so they didn’t need to go to a health club to run
on treadmills that operate on electricity.

But she’s right, they didn’t have the green thing back then.

They drank from a fountain or tap when they were thirsty instead of using a
cup or a plastic bottle every time they had a drink of water. They
refilled their writing pens with ink instead of buying a new pen, and
they replaced the razor blades in a razor instead of throwing away the
whole razor just because the blade got dull.

But they didn’t have the green thing back then.

Back then, people took the bus and kids rode their bikes to school
instead of turning their parents into a 24-hour taxi service. They
had one electrical outlet in a room,not an entire bank of sockets to
power a dozen appliances. And they didn’t need a computerized gadget
to receive a signal beamed from satellites 2,000 miles out in space
in order to find the nearest take-away.

But isn’t it sad the current generation laments how wasteful old
people were just because they didn’t have the green thing back then?

May 12 International Fibromyalgia Awareness Day

Hi – What are you doing on Thursday – our special FM day? Tell me if you are doing anything spectacular -would love to add it to my news.
If you are doing some fund raising please don’t forget the Folly Pogs FM Research fund – we all need a cure. Donations gratefully received – email me please - jeannehambleton@me.com. Take care FH Jeanne

Folly Pogs FM Philanthropists

Surprise surprise! Here I am back again – apologies for being AWOL – absent without leave – but these things happen.

Sorry I have neglected you and Twitter, Facebook, MySpace and so many other ‘pies’ I have my fingers in but quite a lot has been going on in my life… for example 2 young grandsons and you all know how much time that can take… not to mention a heavy workload.

To be honest I am here this time to answer a few questions and take you back to 2007/2008 when with dear friend, Sarah,  pre my commitment to FMA UK working as a Regional Coordinator. I persuaded her to help me organise the Folly Pogs Ball. Why Folly Pogs – don’t ask – I cannot remember why but folks remember it…. except the F and P represented Fibromyalgia Philanthropists.

WHERE AM I COMING FROM?

Driven by a passion to get funds for research I wanted to help to find a cure and the cause of this rotten invisible disability called fibromyalgia. As I said I have two grandsons under 5 and 3 children and I would not wish this condition on any of them, although I believe one of  my sons has all the signs. So I had to get off my butt and do something about it.

What Folly Pogs had not planned for was the financial crisis which started to bite in the autumn of 2008. Our event was scheduled for September that year.

We had big plans but sold so few tickets we were advised to give the ticket money back to keep our reputation in tack. We lost money on the entertainment and missed the chance to get the stars of The Calendar Girl stage production to come to the ball with several Page 3 girls. It was a big disappointment.

This is the report FMA UK carried for me as at that time

http://www.fibromyalgia-associationuk.org/latest-news-mainmenu-2/-events-mainmenu-38/311-folly-pogs-lose-their-ball

As you can imagine Sarah and I were both feeling dejected and decided in the New Year to do a Mother’s Day pamper event.  Bad weather and possibly personal celebrations and bad weather  reduced our income from that night to £82 instead of the estimated £500.

Yes it was bad luck.  After the dust settled in the autumn of 2009 I once again pressed my friend rather heavily and got her involved in the first Fibromyalgia Conference & Pamper Weekend in April 2010.

Although my friend was a  ‘normal’ and keen to help a friend, I managed to kill off her enthusiasm for the next conference. In a weak moment on April 26 2010 when vulnerable I had yes I would do it again and had to get on with it.

We could have not find the funding for a cameraman/filmaker to capture the weekend so we can have DVDs and allow some 170 FMA UK groups across the UK to hear the speakers in their own meetings as another means to raise funds for research. Sponsorship is still hard to get.

FMA UK came up trumps and provided the conference bags for which we were grateful and we duly stuffed the bags with all things FMA UK and other bits and pieces. This year we are anxious to find literature and goodies for the bags which may well have been Tesco plastic shoppers – the white recyclable ones that disintegrate after about 4 weeks making an awful mess on the floor. But Labrha, a French supplements company came to the rescue and provided purple bags.

Pam Stewart came to the conference to fly the FMA UK flag with her exhibition stand and helped folks find groups if they did not already belong. This year at the second conference FMS SAS also had an information table  organised by Nicholas Bond GL for Worthing & West Sussex FM SG and a  FMS SAS Trustee.

We knew we wanted to raise funds for research but we also knew we had big expenses to meet, so in April  2010 we dedicated the funds from the raffle, tombola and a charity auction to the Folly Pogs FM Philanthropists research fund then boasting it’s full and more respectable name. The raffle and tombola raised approximate £800 and the charity auction raised a similar amount  £801. With a donation from Nene Valley FM SG and other financial gifts we now have £1770 in the account. More recently we had had further donations totally another £650 plus  - thanks Marie Caroline, Cherry and an anonymous donor. So we are heading in the right direct.

A REGISTERED CHARITY

It was my hope that by now we would have raised £5,000 for this fund to become a charity before the base figure rises to £10,000.  A few of those fibromite who know our background and what we have been trying to do, have agreed to become trustees once we are accepted by the Charity Commission. Currently we are Not-for-Profit but that does not open the doors of grant making trusts. The Trustees will eventually claim funds from grant making trusts and decide how and where the money is spent. Some of these prospective trustees may be your friends.

This year we ran another conference in April 2011 but due to rising costs and the VAT increases, the lack of manpower it is unlikely we will raise as much for research as we did last time, sadly. However the event with 14 speakers, 14 workshops, 6 exercise programmes and pamper tasters and one to one therapies was another success. There were disappointment in the planning and two big  names dropped out after we believed for 9 months that they would come. This was a big disappointment. But my dear ‘normal’ friend Sarah, and my family, dragged me back to work, I regained my sanity,  and it all worked out very well.  My  dear late Mother always said, “Things happen for a reason. As one door closes, another one opens.” I am still waiting for the opening door  but I live in hope. Maybe some kind millionaire will read this and make a  handsome donation. Is that the opening door I am waiting for I wonder?

THE BACKGROUND TO MY PASSION

The background to my passion about research goes back to 2006. I had visited the States for an NFA conference and was overwhelmed by the knowledge they had that we had not heard of.  They were light years ahead of us.

The manufacturer of a topical pain killing substance offered to fund a book if I would write it. I agreed, went home and started researching and writing.  Buy sadly he wrote from the States and said his company was having a bad time and could not the fund the book.

It was thanks to FMS SAS that as a member of their group since 2003 when I was diagnosed, I was able to visit the California conference and produced a comprehensive report for them.

In 2006 I started the book ‘for real’ and began seeking funds wherever possible. I had intended to finish it pre the April 2010 conference but suddenly the April 2011 conference got in the way as well as my work with FMA UK.  There were just not enough hours in the day.

I am now keen to get this done as I have pledged money from sales to the Folly Pogs FM Philanthropist Research Fund UK.

It is my hope the book will be completed soon and will go on and on and the trustees will continue to seek funding for research when I have left this Mortal Coil.

On that happy thought I had better get back to the drawing board,  finish my paperwork and get back to the book.  You never know I might yet fight my way back onto MY Twitter  section which is currently inhabited by squatters.

If you feel as strongly as I do about the lack of  Government funding for research to find a cure and the cause,  and feel like pressing your MP  to ask that question in Parliament, look up your MP on TheyWorkForYou.com and just add your post code and  you have the details. You could ask him if we can have a Fibromyalgia Flag Day – that would help too.

If you are in the mood to do some fund raising  for research on  the INTERNATIONAL FIBROMYALGIA AWARENESS  DAY, MAY 12th and want to donate  your funds to research,  I would love to hear from you.  Once we are regsitered we will  look at Gift Aid.  Email me at  jeannehambleton@me.com  if you want to help and be involved in our research  project. I always have time for fibromites and those willing to back our research project.

Take care, keep well, good luck on May 12th. Fibro hugs Jeanne

SLEEP DEPRIVATION CAN SLOW YOUR REACTION

From the FMS Global News Desk of Jeanne Hambleton

Courtesy of the National Sleep Foundation  November 23, 2009

Sleep deprivation can have an enormous impact on your health and happiness. Apparently, it can also affect your ability to make split-second decisions, according to a recent study in the journal SLEEP. Researchers at the University of Texas at Austin split 49 West Point cadets into two groups, 21 of whom were deprived of sleep and 28 of whom were well-rested, and tested them on tasks that require quick decisions. According to the study, participants in each group performed the tasks twice, separated by a 24-hour period. Cadets who were sleep-deprived between testing periods saw their accuracy decline by 2.4 percent, and cadets who were well-rested between testing periods improved by 4.3 percent. W. Todd Maddox, one of the researchers, told HealthDay that the type of thinking tested in this study is “critical in situations when soldiers need to make split-second decisions based about whether a potential target is an enemy soldier, a civilian or one of their own.” While people vary in their need for sleep, experts agree that for most adults the amount needed to feel one’s best is somewhere between seven and nine hours per night.

SLEEP STEALERS

More often than not, you have a pretty good idea of what is keeping you awake at night — from the cat scratching at your bedroom door to the snoring partner next to you. But not all “sleep stealers” are obvious. Here are some big sleep stealers that could be keeping you up at night and you may not know it.

Psychological Factors Stress is considered by most sleep experts to be the number one cause of short-term sleeping difficulties. You are not going to solve all your problems while sitting in bed at night, so give it a rest and get some rest.

Lifestyle Stressors Without realizing it, you may be doing things during the day or night that can work against getting a good night’s sleep. These include drinking alcohol or beverages containing caffeine in the afternoon or evening, exercising close to bedtime, following an irregular morning and night time schedule, and working or doing other mentally intense activities right before or after getting into bed.

Medications In addition, certain medications such as decongestants, steroids and some medicines for high blood pressure, asthma, or depression can cause sleeping difficulties as a side effect.

FATIGUE & EXCESSIVE SLEEPINESS

Do you find it difficult to get out of bed in the morning? Do you sometimes feel sleepy while watching television or driving? If so, you may be one of the millions of Americans who suffer from excessive sleepiness, a condition that can significantly reduce quality of life, decrease productivity and interfere with relationships. Most people feel tired occasionally, but excessive sleepiness that persists is neither normal nor healthy.

CAUSES:

One of the primary causes of excessive sleepiness is self-imposed sleep deprivation. In the U.S. and many other parts of the world, sleep loss may occur as a result of economic or societal pressures. People may skimp on sleep in hopes of getting more done, and widespread access to technology makes it possible to stay busy (at the computer, for example) around the clock. By some estimates, people now sleep about 20 percent less than they did a century ago.

Working at night and sleeping during the day can also cause excessive sleepiness. Some people are able to adjust to such a schedule. However, others may never overcome the body’s natural tendency to be awake during the day and asleep at night. A similar phenomenon occurs with jet lag, in which the body is “out of sync” with the natural environment. In general, symptoms of jet lag increase with the number of time zones crossed. That is, someone flying from Beijing to San Francisco is more likely to suffer worse jet lag than someone flying from San Francisco to New York.

Excessive sleepiness is also linked with a number of primary sleep disorders. For example, sleep disordered breathing (SDB), which includes snoring and obstructive sleep apnea (OSA), is often associated with excessive sleepiness. Because SDB may result in frequent interruptions during sleep, it can lead to abnormal sleepiness during waking hours no matter how many hours a person actually spent in bed.

Insomnia is another main cause of perceived daytime sleepiness or fatigue. Insomnia symptoms may include difficulty falling asleep, difficulty staying asleep, and/or waking up still tired as well as daytime impairments such as excessive sleepiness, cognitive deficits (e.g., concentration and memory problems), fatigue, and irritability.

Narcolepsy is a neurological disorder characterized by disabling sleepiness. Most patients begin to experience symptoms in their teens or 20s, but symptoms may appear in younger children or older adults. Narcolepsy is also recognized by insomnia at bedtime, sudden sleep attacks, cataplexy (sudden muscular weakness), hallucinations, and sleep paralysis.

Restless legs syndrome (RLS) is a neurological disorder characterized by unpleasant sensations in the legs and a strong urge to move them.  People who suffer from RLS may mistake the problem for insomnia since RLS symptoms are usually worse at night, leading to insomnia at night and excessive sleepiness during the day.

The good news is that these sleep disorders can be easily diagnosed and effectively treated. If you have excessive daytime sleepiness and/or feel you may suffer from a sleep disorder, talk to a healthcare professional about the problem as soon as possible.

Excessive sleepiness may also be caused by a variety of physical and mental illnesses as well as some medications.  If you suffer from a medical condition and you are experiencing excessive sleepiness, talk to your healthcare professional about the problem.  In many cases, properly treating the medical condition may alleviate sleepiness. In other cases, sleepiness must be treated independently.

POLL DATA:

Excessive sleepiness is not just a matter of feeling lousy – it can also affect mood, relationships, work, and quality of life.  According to the results of NSF’s 2008 Sleep in America poll:

36 percent of American drive drowsy or fall asleep while driving

29 percent of Americans fall asleep or become very sleepy at work

20 percent have lost interest in sex because they are too sleepy

14  percent report having to miss family events, work functions, and leisure activities in the past month due to sleepiness.

Each of these consequences can have an enormous impact on an individual’s health and happiness.

One of the most serious risks associated with excessive sleepiness is drowsy driving.  NSF’s 2008 poll revealed that a whopping 36 percent of American adults have nodded off or fallen asleep while driving.  Sleepiness and driving do not mix.  If you feel sleepy, you should not drive. Visit drowsydriving.org. to learn how to prevent a drowsy driving-related crash.

There are several tools used to evaluate a person for excessive sleepiness.  An individual’s personal report of how they feel is also important in characterizing a sleepiness problem.  Interviewing a person’s bed partner or those sleeping nearby is also helpful in identifying things that occur during sleep (e.g., snoring and breathing pauses during sleep).

Special questionnaires developed specifically to provide insight regarding daytime sleepiness (these include the Epworth Sleepiness Scale and Stanford Sleepiness Scale). Sleep diaries may also be helpful in assessing and evaluating sleepiness as well as any underlying factors.

Additionally, there are several tests that may be employed when a sleep disorder such as SDB or narcolepsy is suspected.  Such tests may include an overnight sleep study or “polysomnogram,” and the Multiple Sleep Latency Test (MSLT).

TREATMENT:

Once a cause for excessive sleepiness is determined, there are generally a range of treatment options available to patients, including behavioral and pharmacological (drug) therapies.  For example, if the primary cause of sleepiness is OSA, continuous positive airway pressure (CPAP) or an oral appliance may be prescribed. If excessive sleepiness persists in OSA patients using CPAP or is the result of narcolepsy, approved medications may be appropriate. For sleepiness caused by voluntary sleep deprivation or poor sleep habits, treatment will center on adopting behavioral measures to make getting adequate sleep a top priority.

COPING:

Although everyone should employ all the elements of good sleep hygiene, this is particularly important for anyone with excessive sleepiness.  These are behaviors and habits that can promote healthy sleep, which helps improve alertness during the day.  They include:

Maintaining a consistent sleep schedule, even on the weekends

Developing a regular, relaxing bedtime routine

Using your bedroom only for sleep and sex; if you do this, you will strengthen the  association between bed and sleep

Create a sleep environment that is dark, quiet, comfortable and slightly cool

Removing all work materials, televisions, phones, and other distractions from the bedroom

Avoiding caffeine in the second half of the day

Limiting alcohol – it can disturb sleep

For some people with excessive sleepiness, adopting healthy sleep habits is enough to resolve the problem.

People vary in their need for sleep, but experts agree that for most adults the amount needed to feel one’s best is somewhere between seven and nine hours per night.  Teens and young adults usually need nine hours of sleep or more per night.  If you suffer from excessive sleepiness that persists for more than three weeks despite allowing adequate time for sleep, discuss the problem with your healthcare professional.

GERD AND SLEEP

GERD, also known as acid reflux, is an acronym that stands for gastroesophageal reflux disease. It is a chronic illness that affects 5-7% of the world population and is associated with serious medical complications if untreated. GERD is the 3rd most common gastrointestinal disorder in the U.S. Most patients with GERD also experience nighttime heartburn, which is more bothersome. And according to the 2001 NSF Sleep in America poll, adults in America who experience nighttime heartburn are more likely to report having symptoms of sleep problems/disorders such as insomnia, sleep apnea, daytime sleepiness and restless legs syndrome than those who don’t have night time heartburn.

GERD describes a backflow of acid from the stomach into the esophagus. Most patients with GERD experience an increase in the severity of symptoms (usually heartburn or coughing and choking) while sleeping or attempting to sleep. If the acid backs up as far as the throat and larynx, the sleeper will wake up coughing and choking. If the acid only backs up as far as the esophagus the symptom is usually experienced as heartburn.

Most people refer to GERD as heartburn, although you can have it without heartburn. Sometimes GERD can cause serious complications including inflammation of the esophagus from stomach acid that causes bleeding or ulcers. In a relatively small number of patients, GERD has been reported to result in a condition called Barrett’s esophagus, which over time can lead to cancer. Also, studies have shown that asthma, chronic cough, and pulmonary fibrosis may be aggravated or even caused by GERD.

GERD is common and may be frequently overlooked in children. It can cause repeated vomiting, coughing, and other respiratory problems. Talk to your child’s doctor if the problem occurs regularly and causes discomfort.

No one knows why people get GERD but factors that may contribute to it include:

age, diet, alcohol use, obesity, pregnancy, smoking.

Also, certain foods can be associated with reflux events, including:

citrus fruits, chocolate, drinks with caffeine, fatty and fried foods, garlic and onions,

mint flavorings, spicy foods, tomato-based foods, like spaghetti sauce, chili, and pizza.

GERD affects people of all ages, ethnicities and cultures and tends to run in families.

SYMPTOMS:

The most frequently reported symptoms of GERD are:

Heartburn

Acid regurgitation

Inflammation of the gums

Erosion of the enamel of the teeth

Bad breath

Belching

Chronic sore throat

Some patients with GERD experience no symptoms at all. Because of the wide range of symptoms associated with GERD and the need to distinguish it from heart-related problems, the number of medical visits and tests needed to diagnose or rule out the disease tends to be quite high.

TREATMENT:

GERD is a recurrent and chronic disease that does not resolve itself. If you are diagnosed with GERD, there are several methods of treatment which your doctor will discuss with you including behavioral modifications, medications, surgery, or a combination of methods. Over-the-counter medications may provide temporary relief but will not prevent symptoms from recurring.

The lifestyle changes you can make to minimize GERD include avoiding fats, onions, chocolate and alcohol. Losing weight may also help alleviate GERD symptoms.

Because of the association between GERD and sleep apnea, people with nighttime GERD symptoms should be screening for sleep apnea.

COPING:

These lifestyle modifications should help minimize reflux:

Avoid lying down after a large meal

Eat smaller meals and maintain an upright, relaxed posture

Avoid fats, onions, chocolate and alcohol

Avoid potassium supplements

Always swallow medication in the upright position and wash it down with lots of water.

POLL DATA:

GERD is the 3rd most common gastrointestinal disorder in the US and one of the leading causes of disturbed sleep among people between the ages of 45 and 64, according to the 2002 NSF Sleep in America poll. Reviewed by William C. Orr, Ph.D.

CAFFEINE AND SLEEP

Caffeine has been called the most popular drug in the world. It is found naturally in over 60 plants including the coffee bean, tea leaf, kola nut and cacao pod. All over the world people consume caffeine on a daily basis in coffee, tea, cocoa, chocolate, some soft drinks, and some drugs.

Because caffeine is a stimulant, most people use it after waking up in the morning or to remain alert during the day. While it is important to note that caffeine cannot replace sleep, it can temporarily make us feel more alert by blocking sleep-inducing chemicals in the brain and increasing adrenaline production.

There is no nutritional need for caffeine in the diet. Moderate caffeine intake, however, is not associated with any recognized health risk. Three 8 oz. cups of coffee (250 milligrams of caffeine) per day is considered a moderate amount of caffeine. Six or more 8 oz. cups of coffee per day is considered excessive intake of caffeine.

Caffeine enters the bloodstream through the stomach and small intestine and can have a stimulating effect as soon as 15 minutes after it is consumed. Once in the body, caffeine will persist for several hours: it takes about 6 hours for one half of the caffeine to be eliminated. There are numerous studies to support the idea that caffeine causes physical dependence. If you suspect that you or someone you know is dependent on to caffeine, the best test is to eliminate it and look for signs of withdrawal, such as headache, fatigue and muscle pain.

Although caffeine is safe to consume in moderation, it is not recommended for children. It may negatively affect a child’s nutrition by replacing nutrient-dense foods such as milk. A child may also eat less because caffeine acts as an appetite suppressant. Caffeine can be safely eliminated from a child’s diet since there is no nutritional requirement for it.

Although the FDA does not advise against women who are pregnant or nursing to eliminate caffeine from the diet, many experts recommend limiting the amount consumed during that time to one or two 8 oz. servings per day.

SYMPTOMS:

Caffeine is a stimulant. In moderate doses, it can:

Increase alertness

Reduce fine motor coordination

Cause insomnia

Cause headaches, nervousness and dizziness

It has also been known to result in:

Anxiety

Irritability

Rapid heartbeat

Excessive urination

Sleep disturbance

A “caffeine crash” once the effects wear off.

TREATMENT:

If the conditions listed under “symptoms” occur, discontinue the use of caffeine. These effects are more likely to occur if caffeine is consumed in large doses. Children and women who are nursing or pregnant should avoid caffeine. People who are taking any prescription medication should talk to their doctors before consuming caffeine.

Knowing the caffeine content of your food and drinks can help you keep caffeine intake at a healthy level so you can still reap the benefits of a good night’s sleep.

COPING:

In order to sleep better at night and reduce daytime sleepiness, try practicing the following sleep tips:

Maintain a regular bed and wake time schedule including weekends

Establish a regular, relaxing bedtime routine such as taking a bath or listening to music

Create a sleep-conducive environment that is dark, quiet, comfortable and cool

Sleep on a comfortable mattress and pillows

Use your bedroom only for sleep and sex

Finish eating at least 2-3 hours before your regular bedtime

Exercise regularly but avoid it a few hours before bedtime

Avoid caffeine (e.g. coffee, tea, soft drinks, chocolate) close to bedtime

Don’t smoke — not only is it a major health risk it can lead to poor sleep

Avoid alcohol close to bedtime; it can lead to disrupted sleep later in the night.

POLL DATA:

According to the 2001 Sleep in America poll, 43% of Americans are “very likely” to use caffeinated beverages to combat daytime sleepiness.

Reviewed by: Greg Belenky, M.D.

DIET, EXERCISE AND SLEEP

For years your doctor, your mom and your friend who goes to the gym multiple times a week have probably been telling you to eat better and exercise more. It is all you hear on television, in the newspapers and on talk radio. New doctors and dieticians usher in new diets, new fads, and so you’ve made some lifestyle changes – cutting back on your fat and sweets intake, and doing some cardiovascular exercise a few days a week. Despite all this, you still feel burned out, can’t drop those extra pounds, and don’t have the energy to greet each day with enthusiasm. What are you missing?

THE THIRD PIECE OF THE PUZZLE: SLEEP

Though the exact mechanisms of how sleep works, how sleep rejuvenates the body and mind is still mysterious, one thing sleep specialists and scientists do know is that adequate sleep is necessary for healthy functioning. Research shows that all mammals need sleep, and that sleep regulates mood and is related to learning and memory functions. Not only will getting your zzzs help you perform on a test, learn a new skill or help you stay on task, but it may also be a critical factor in your health, weight and energy level.

SLEEP PROBLEMS AND OBESITY: INTERACTING EPIDEMICS

An estimated 18 million Americans have sleep apnea, a sleep-related breathing disorder that leads individuals to repeatedly stop breathing during sleep. Not only does sleep apnea seriously affect one’s quality of sleep, but it can also lead to health risks such as stroke, heart attack, congestive heart failure and excessive daytime sleepiness. Sleep apnea is often associated with people who are overweight – weight gain leads to compromised respiratory function when an individual’s trunk and neck area increase from weight gain.

These interacting problems of weight gain and sleep apnea make it difficult to help oneself off the slippery slope of health problems. From a behavioral perspective, those suffering from sleep apnea may be less motivated to diet or exercise – daytime sleepiness lowers their energy levels and makes it difficult to commit to an exercise and/or diet program which would improve both their weight and sleep apnea.

Unfortunately, losing a significant amount of weight in a healthy manner can be very difficult, so Richard Simon, MD recommends treating sleep apnea first: “Unfortunately, we do not have great treatments for obesity that have long-term success rates of much greater than 5–10%,” Simon says. “Thus I prefer to start therapy with [continue positive airway pressure] (70% success rate) and then add exercise (probably less than a 50% success rate). People feel restored when they are effectively treated for sleep apnea and are more willing to start exercising then.”

Sleep deprivation may also inhibit one’s ability to lose weight – even while exercising and eating well! A 1999 study at the University of Chicago showed that restricting sleep to just 4 hours per night for a week brought healthy young adults to the point that some had the glucose and insulin characteristics of diabetics. Such sleep restriction may have been a bit extreme, but it is also not altogether uncommon in our society and is a pattern deemed the “royal route to obesity” by Eve Van Cauter, PhD, who conducted the Chicago study.

GETTING IN SHAPE: HOW SLEEP AND EXERCISE DO A BODY GOOD

Though research shows that exercise is certainly good for one’s body and health, properly timing exercise is necessary to maximize the beneficial effects. For example, a good workout can make you more alert, speed up your metabolism and energize you for the day ahead, but exercise right before bedtime can lead to a poor night’s sleep.

All the jumping jacks in the world would not make up for a night of tossing and turning! Sleep experts recommend exercising at least three hours before bedtime, and the best time is usually late afternoon. Exercising at this time is beneficial because body temperature is related to sleep. Body temperatures rise during exercise and take as long as 6 hours to begin to drop. Because cooler body temperatures are associated with sleep onset, it’s important to allow the body time to cool off before sleep.

DIET AND SLEEP: A HEALTHY HELPING OF THE RIGHT STUFF

Are you someone who needs a fresh cup of java to coax you out of bed in the morning? Or perhaps you prefer an afternoon jolt from the cola vending machine? Or maybe you are more the candy bar type – in any case, you are not alone. In a 24/7 culture, cups of coffee, cans of soda and candy bars are staples of everyday consumers. For some, the day cannot begin without a cup of Starbucks and for many students today no study break is complete without a can of Coke. How did caffeine become the drug (and food) of choice?

In fact, lack of sleep creates a vicious cycle – the more tired you are, the more caffeine you will consume to stay awake during the day; but the more caffeine you consume, the harder it will be to fall asleep at night. Not only are foods and drinks high in caffeine likely to keep you up at night, but they are also usually replete with sugar or artificial sugar and not much else. When a healthy snack such as a carrot or granola bar is replaced with a can of Mountain Dew, you are at higher risk for putting on weight and it becomes harder to sustain energy for a longer period of time.

Food is also related to sleep by appetite and metabolism. Research by Dr. Van Cauter shows that people who do not get enough sleep are more likely to have bigger appetites due to the fact that their leptin levels (leptin is an appetite regulating hormone) fall, promoting appetite increase. This link between appetite and sleep provides further evidence that sleep and obesity are linked. To top it off, the psychological manifestations of fatigue, sleep and hunger are similar. Thus, when you are feeling sleepy you might feel like you need to head for the fridge instead of bed.

WHAT IT ALL MEANS: HOW DIET, SLEEP AND EXERCISE AFFECT YOU

By now you probably realize that health is complex – if one part of the body system suffers, you are likely to see consequences in other areas of your life. Though diet and exercise are critical components of healthy lifestyles, it is also important to remember that sleep is inherently linked with how we eat (and how much), how we exercise (and whether or not we lose weight), and how we function on a daily basis. Getting the proper amount of sleep each night is necessary to face the world with your best foot forward. Sleep will help you on the road to good fitness, good eating and good health.

NAPPING

More than 85% of mammalian species are polyphasic sleepers, meaning that they sleep for short periods throughout the day. Humans are part of the minority of monophasic sleepers, meaning that our days are divided into two distinct periods, one for sleep and one for wakefulness. It is not clear that this is the natural sleep pattern of humans. Young children and elderly persons nap, for example, and napping is a very important aspect of many cultures.

As a nation, the United States appears to be becoming more and more sleep deprived. And it may be our busy lifestyle that keeps us from napping. While naps do not necessarily make up for inadequate or poor quality nighttime sleep, a short nap of 20-30 minutes can help to improve mood, alertness and performance. Nappers are in good company: Winston Churchill, John F. Kennedy, Ronald Reagan, Napoleon, Albert Einstein, Thomas Edison and George W. Bush are known to have valued an afternoon nap.

TYPES:

Naps can be typed in three different ways:

Planned napping (also called preparatory napping) involves taking a nap before you actually get sleepy. You may use this technique when you know that you will be up later than your normal bed time or as a mechanism to ward off getting tired earlier.

Emergency napping occurs when you are suddenly very tired and cannot continue with the activity you were originally engaged in. This type of nap can be used to combat drowsy driving or fatigue while using heavy and dangerous machinery.

Habitual napping is practiced when a person takes a nap at the same time each day. Young children may fall asleep at about the same time each afternoon or an adult might take a short nap after lunch each day.

TIPS:

A short nap is usually recommended (20-30 minutes) for short-term alertness. This type of nap provides significant benefit for improved alertness and performance without leaving you feeling groggy or interfering with nighttime sleep.

Your surroundings can greatly impact your ability to fall asleep. Make sure that you have a restful place to lie down and that the temperature in the room is comfortable. Try to limit the amount of noise heard and the extent of the light filtering in. While some studies have shown that just spending time in bed can be beneficial, it is better to try to catch some zzz’s.

If you take a nap too late in the day, it might affect your nighttime sleep patterns and make it difficult to fall asleep at your regular bedtime. If you try to take it too early in the day, your body may not be ready for more sleep.

BENEFITS:

Naps can restore alertness, enhance performance, and reduce mistakes and accidents. A study at NASA on sleepy military pilots and astronauts found that a 40-minute nap improved performance by 34% and alertness 100%.

Naps can increase alertness in the period directly following the nap and may extend alertness a few hours later in the day. Scheduled napping has also been prescribed for those who are affected by narcolepsy. Napping has psychological benefits. A nap can be a pleasant luxury, a mini-vacation. It can provide an easy way to get some relaxation and rejuvenation.

Most people are aware that driving while sleepy is extremely dangerous. Still, many drivers press on when they feel drowsy in spite of the risks, putting themselves and others in harm’s way. While getting a full night’s sleep before driving is the ideal, taking a short nap before driving can reduce a person’s risk of having a drowsy driving crash. Sleep experts also recommend that if you feel drowsy when driving, you should immediately pull over to a rest area, drink a caffeinated beverage and take a 20-minute nap.

Shift work, which means working a schedule that deviates from the typical “9 to 5″ hours, may cause fatigue and performance impairments, especially for night shift workers. In a 2006 study, researchers at the Sleep Medicine and Research Center affiliated with St. John’s Mercy Medical Center and St. Luke’s Hospital in suburban St. Louis, MO, looked at the effectiveness of taking naps and consuming caffeine to cope with sleepiness during the night shift. They found that both naps and caffeine improved alertness and performance among night shift workers and that the combination of naps and caffeine had the most beneficial effect.

James K. Walsh, PhD, one of the researchers who conducted the study, explains, “Because of the body’s propensity for sleep at night, being alert and productive on the night shift can be challenging, even if you’ve had enough daytime sleep.” “Napping before work combined with consuming caffeine while on the job is an effective strategy for remaining alert on the night shift.”

NEGATIVE EFFECTS:

In spite of these benefits, napping is not always the best option for everyone. For example, some people have trouble sleeping any place other than their own bed, making a nap at the office or anywhere else unlikely. Other people simply have trouble sleeping in the daytime; it could be that certain individuals are more sensitive to the midday dip than others – those who are may feel sleepier and have an easier time napping. Here are some other negative effects:

Naps can leave people with sleep inertia, especially when they last more than 10-20 minutes. Sleep inertia is defined as the feeling of grogginess and disorientation that can come with awakening from a deep sleep. While this state usually only lasts for a few minutes to a half-hour, it can be detrimental to those who must perform immediately after waking from a napping period. Post-nap impairment and disorientation is more severe, and can last longer, in people who are sleep deprived or nap for longer periods.

Napping can also have a negative effect on other sleeping periods. A long nap or a nap taken too late in the day may adversely affect the length and quality of night time sleep. If you have trouble sleeping at night, a nap will only amplify problems.

One study has indicated that napping is associated with increased risk of heart failure in people already at risk.

STIGMAS:

While research has shown that napping is a beneficial way to relieve tiredness, it still has stigmas associated with it. Napping indicates laziness, a lack of ambition, and low standards. Napping is only for children, the sick and the elderly. Though the above statements are false, many segments of the public may still need to be educated on the benefits of napping.

A recent study in the research journal Sleep examined the benefits of naps of various lengths and no naps. The results showed that a 10-minute nap produced the most benefit in terms of reduced sleepiness and improved cognitive performance. A nap lasting 30 minutes or longer is more likely to be accompanied by sleep inertia, which is the period of grogginess that sometimes follows sleep.

By now you are probably thinking about ways to incorporate naps into your daily routine. Keep in mind that getting enough sleep on regular basis is the best way to stay alert and feel your best. But when fatigue sets in, a quick nap can do wonders for your mental and physical stamina.

…ends…

Heard Through the Grapevine: Test kit for XMRV to be available from Reno-based VIP Dx

From the  FMS Global News Desk of Jeanne Hambleton

Courtesy of ProHealth

Copyright © 2009 ProHealth, Inc.

 

 

Rumor on the ProHealth Message Boards has it that Viral Immune Pathology Diagnostics (VIP Dx) in Reno, Nevada (www.redlabsusa.com), will soon make available a test kit for the XMRV virus – the retrovirus which most of the world knows by now is thought to be a biomarker for a large proportion of chronic fatigue syndrome (ME/CFS) patients.

 

According to the buzz, ME/CFS patients and their physicians will be able to order VIP Dx kits as soon as pricing is established – and that was due to be Friday, Oct 16, according to a ProHealth ME/CFS Message Board user who has already arranged to receive a kit when they become available for shipment. According to her, “They send it to you by FedEx and you have to have a Dr. sign off and take it to a lab. [VIP Dx] pays for it to be sent back.”

 

This cannot  be offered in Europe. As of Oct 14, a Co-Cure listserv poster reported that Marguerite Ross, Director of Marketing & Client Relations at VIP Dx, indicated to him “we cannot offer the test in Europe because of the time difference and temperature changes the sample would experience,[which would render it]unsuitable for analysis.” In the same communication, she stated “the test will be available in the USA in about 3-4 weeks as it is undergoing final validation and licensing.”

 

According to the initial news on the VIP Dx test – posted Oct 9 on the CFS Warrior blog (http://cfswarrior.blogspot.com), there is “a PCR test for the XMRV virus itself. Another test kit recommended by Dr. Paul Cheney is the NKCP & LYEA test… If you want to be tested call the lab at 775-351-1890 and they will ship out a kit to you. Your doctor has to sign off, then take it to a local lab to get the test done and then it gets shipped overnight back to VIP Labs. It takes about two weeks to get the results. The woman I spoke to was very nice. They are swamped with calls but expected it.”

 

VIP Dx is the new name of the former REDLABS USA, launched years ago with the assistance of Belgium-based ME/CFS researcher Dr. Kenny De Meirleir, who has no financial interest in the venture. It was named after De Meirleir’s own R.E.D. Laboratories, a biotechnology company in Belgium focused on “developing clinical diagnostic tests and therapies for chronic immune diseases.” VIP Dx is located geographically near the Whittemore-Peterson Institute, which is part of the University of Nevada, Reno. VIP’s medical director – Dr. Vincent Lombardi, PhD – was recently hired from the UN-Reno School of Medicine, and reportedly played a role in the WPI testing.

 

Test Availability from Whittemore-Peterson?

 

Meanwhile, according to the XMRV FAQ at the WPI website, “The WPI has developed a blood test for the detection of XMRV. The test is currently undergoing clinical evaluation and validation. We hope to have a clinical test available to the public within the year.”

 

 

NEWS FROM  http://www.redlabsusa.com/  states:

 

VIP Dx - Viral Immune Pathology

News Icon LATEST NEWS: XMRV TESTING


Dr. Vincent Lombardi, the primary investigator and first author on a paper that appeared in the 8 October 2009 issue of “Science”, is the Director of Operations for the licensing and development of the XAND test assays used by VIP Dx for the detection of XMRV. To read this landmark publication, “Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome“, please go to (www.sciencemag.org). We are pleased to announce that VIP Dx has licensed this technology allowing us to offer the most accurate and sensitive testing available for XAND (XMRV associated neuro-immune disease).

VIP Dx 5625 Fox Avenue, Suite 369  Reno, NV 89506  Phone: (775) 351-1890  Fax: (775) 682-851 E-mail: info@vipdx.com 9:00 a.m. – 5:00 p.m. (PST)

Press Releases

October 23, 2009, Reno, Nevada

It is with great pleasure that Viral Immune Pathology Diagnostics (VIP Dx) announces the introduction of its family of diagnostic tests for the Xenotropic Murine Leukemia Virus-like Virus for XMRV associated neurological disease (XAND).

XMRV is a gamma retrovirus and replicates in dividing cells. Low-level latent infections are best detected in activated, dividing cells; to activate a latent virus takes additional cell culture. Productive infections are more easily detected without special treatment of the specimen.

Each XAND specimen must have an XAND acceptance code on the test requisition. The XAND acceptance code is assigned by our staff and will arrive on the test requisition in your specimen kit. Specimens sent without the appropriate acceptance code may result in the delay or inability to perform the diagnostic test. The diagnostic tests available for XAND* are as follows:

XAND by PCR for XMRV active infection: Test Code XAND ($400)

XAND1 by virus culture for XMRV latent infection: Test Code XND1 ($500)

XAND2 by PCR for XMRV active infection and virus culture for latent infection: Test Code XND2 ($650)

We are accepting XAND tests on Tuesdays and Fridays only due to the incubation period required for proper analysis. Therefore, you must have your blood drawn on Monday or Thursday and ship immediately back to us by priority overnight FedEx for receipt by us on Tuesday or Friday.

For XAND testing you must use the coded test requisition provided with your kit. Refer to the updated specimen guidelines in the right column of the test requisition for proper blood draw.

No special preparation is required for specimens; ship specimens at ambient (room) temperature. Specimens must be received within 24 hours for proper analysis. Collection and shipping instructions are included in each kit along with all required specimen tubes. The return clinical envelope and overnight airbill are also included.

To order you test kit, please e-mail your full name, address and telephone number toinfo@vipdx.com. There is a 4-6 week back order. VIP Dx is committed to having everyone tested who wants to be tested. Please accept our sincere apology for any delays. We thank you for your support and patience.

Please visit our website at www.vipdx.com for more information on VIP Dx and our tests.

Please visit Whittemore Peterson Institute for FAQ on the XMRV virus at www.wpinstitute.org.  On behalf of the VIP Dx team, we thank you for your continued support.

* The XAND tests were developed and their performance characteristics were determined and validated by VIP Dx. These tests have not been approved by the U.S. Food and Drug Administration (FDA) for diagnostic purposes. Medical expertise is required for XAND test interpretation.

 

….ends…..

 

 

Alternative Treatments for Fibromyalgia

From the FMS Global News Desk of Jeanne Hambleton (UK)

Courtesy WebMD.com 

 

How well do they work?

By Jeanie Lerche Davis  Reviewed by Brunilda Nazario, MD

 

To get relief from fibromyalgia pain, more and more people are trying alternative treatments. It is often instinctive — putting an icepack on a painful spot or reaching for the heating pad when muscles hurt. Or it feels good – like a massage. Even acupuncture is becoming a mainstream pain treatment, with endorsements from the NIH and the World Health Organisation.

Now, researchers are honing in on how these various home remedies and alternative treatments work.

“In all these therapies, we are stimulating pressure points… we think there may be a similar underlying mechanism in how they work,” says Tiffany Field, PhD, director of the Touch Research Institute at the University of Miami School of Medicine.

Pressure applied to the right spot triggers all sorts of changes in the body — in a good way, she explains. The pressure points have nerve connections to major nerves in the body that affects physiological processes.”

This reduces flow of stress hormones and pain-inducing chemicals — and ramps up production of mood-related brain chemicals such as serotonin, she says. The result: The body slows down, you feel calmer, sleep is more restful — and you are able to tolerate the pain of fibromyalgia better.

 

Massage and Fibromyalgia Treatment

 

For the past three decades, Field has conducted more than 80 studies looking at massage’s effects on various conditions. Her research team looks deeply at the underlying physiological processes involved in sleep — especially as it relates to fibromyalgia pain.

Researchers tracked patients’ sleep patterns, also measuring “substance P,” a brain chemical that is central to fibromyalgia pain. People with fibromyalgia pain have higher levels of substance P in the spinal fluid. They also have lower than normal levels of mood-boosting serotonin.

When they get a massage, all that changes. Field’s studies have shown less substance P in patients’ saliva — and they report less pain. They also have fewer painful tender points.

The studies typically involve 20-minute massages — which is only practical if a significant other is trained to do it, she says. One bonus for the family masseuse: People who give massages have lower stress hormone levels, too.

To get the most benefit, it is important to apply moderate pressure. “It does not matter whether you are rubbing, kneading, or stroking — it is the pressure that makes the difference,” Field says. “You have to move the skin, actually see finger indentations in the skin. It does not hurt, but it is more than light stroking. We have found that light stroking does not help.”

Massage also helps relieve depression, Field adds. “Depression is related to low serotonin, low dopamine, and increased cortisol. We can jazz that up with massage. There are a lot of positive benefits from massage.”

 

Acupuncture and Fibromyalgia Treatment

 

Acupuncture, a traditional Chinese treatment, also helps ease fibromyalgia symptoms. Acupuncture works on brain chemicals to decrease anxiety, depression, insomnia, stress, and pain.

 

Understanding Fibromyalgia

Fibromyalgia is characterized by chronic widespread pain and tenderness for at least three months. You can take steps to manage fibromyalgia pain and help yourself feel better.

Diagnosis

Currently there are no diagnostic tests, such as x-rays or blood tests, to detect fibromyalgia. The symptoms of fibromyalgia may overlap with the symptoms of some other conditions. That is why fibromyalgia is sometimes difficult for healthcare professionals to diagnose.

Some healthcare providers use certain guidelines to help make a diagnosis. According to guidelines set by the American College of Rheumatology, a person may have fibromyalgia if he or she has both:

Chronic widespread pain that affects the right and left sides of the body above and below the waist

Feels pain in at least 11 of 18 possible tender points (nine on one side of the body, nine on the other) when light pressure is applied

Your healthcare provider may use these guidelines or other methods to make a diagnosis of fibromyalgia.

Discuss all of your symptoms with your healthcare provider. Talk openly with him or her about what you are feeling and how your symptoms are affecting you. You can work together to create a plan that meets your individual needs and helps you manage your symptoms.

 

Fibromyalgia Symptoms & Potential Causes

Symptoms of Fibromyalgia

The common symptoms of fibromyalgia include:

Pain that can change location and intensity from day to day

Many tender places on the body that are painfu

Fibromyalgia can make it hard for you to function. This is not a complete list. You may have other symptoms. You should discuss all of your symptoms with a healthcare provider. Only a healthcare provider can diagnose fibromyalgia.

 

What Causes Fibromyalgia?

No one knows exactly what causes fibromyalgia. Some possible triggers may include:

A physically traumatic or stressful event

An emotionally stressful event

An illness or an immune disorder

Why Do I Hurt?

The cause of fibromyalgia is unknown. If you have fibromyalgia, you may be more sensitive to pain than people who do not have fibromyalgia.

 

 

 

©2005-2009 WebMD, LLC. All rights reserved.

(http://www.webmd.com/fibromyalgia/fibromyalgia-pain-8/alternative?ecd=wnl_day_051609&em=amVhbm5laGFtYmxldG9uQG1hYy5jb20http://www.webmd.com/living-with-fibro/fibro-symptoms-causes   http://www.webmd.com/living-with-fibro/understanding-fibro   )              

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Fibromyalgia and Stress – Finding the Right Treatment

From FMS Global News Desk of Jeanne Hambleton (UK)

Courtesy of Fibromyalgiaconsultant.com

by Matt Dew

 

The two health problems puzzling many people are fibromyalgia and stress. Fibromyalgia and stress influence each other and often co-exist. Stress is a personalized response to the alterations in the environment that is based on personal perception of feeling in a certain situation. There is an inherent correlation between fibromyalgia and stress though perception differs from one to another.

Relatively, every individual feels some amount of stress throughout fibromyalgia and it surely worsens the condition to a significant amount. Stress generally offers a negative effect on healthy well-being. Furthermore, fibromyalgia is no exception.

Now we will shed light on the potential relationship between fibromyalgia and stress response. Then we will progress further by discussing about few stress management strategies that you can take on particularly when you are experiencing fibromyalgia.

The Relationship

In most of the cases, people with fibromyalgia are identified as having ‘Type A’ personality, the group of people featured as stress-prone as compared to other group of people belonging to ‘Type B’ personality. Astonishing but true, research proposes people with fibromyalgia experience hormonal imbalance that resembles the same disorder occurring during stress response.

Thus, it can be said that there is a biological relationship between fibromyalgia and stress response. However, more research is actually needed to prove the pattern and strength of the relationship.

Warm Bath Technique

You need to take a warm bath mixed with two to three drops of essential oils. Do not depend on anyone else for choosing your essence; rather choose the fragrance of your own preference. Lavender is suggested by many aromatherapists as one of the major fragrances that aids in relaxation. You may apply your own creative instinct to design your bathing environment.

Because you are suffering from fibromyalgia and stress is an inevitable part of it, you need to do something exciting and soothing to your mind too. Try using candlelight bathing or a bubble bath to revive yourself.

Deep Breathing and Guided Imagery

Instead of chest breathing, you have to practice deep abdominal breathing. Deep breathing is a necessary instrument to do an appropriate relaxation. You can simply lie down and breathe deeply. Not more than a few minutes practice of breathing relaxation can offer you a stress-free day.

When you practice deep breathing, do not forget to implement guided imagery to improve your experience of relaxation. In guided imagery, you should visualize beautiful scenes or events with the help of your mental eyes. This will bring an extremely peaceful effect to your mind.

Choose Healthy Diet

Healthy diet is proven to be an effective method to stay away from many illnesses includes fibromyalgia and stress. People with fibromyalgia must avoid broccoli, caffeine, aspartame and alcohol in their diet. Besides, it is suggested to walk for at least 20 to 30 minutes most days of the week as well to quicken the recovery. 

Fibromyalgia and Vitamin D Deficency – Recognising the Relationship

Many researches have been conducted to improve the understanding of relation between fibromyalgia and vitamin D deficiency. Those researches are connecting the muscular pain and debility which are experienced by fibromyalgia patients, to an insufficient intake or meager absorption of vitamin D in the body. Below is a brief explanation of relation between fibromyalgia and vitamin D deficiency.

A number of studies on both adult and children subjects have discovered that low levels of vitamin D in the body cause unexplained bone and muscular pain. These results have been accepted by health experts.

If there is a confirmation about relation between fibromyalgia and vitamin D deficiency, it will be possible to treat the pain and debility of fibromyalgia with sources of vitamin D. Even so, this does not mean that fibromyalgia is merely a deficiency of vitamin D in the body. Vitamin D deficiency is only one factor arising or aggravating symptoms of fibromyalgia.

The observed improvement in the overall condition of fibromyalgia patients using vitamin D indicates a strong connection between the disease and the function of vitamin D in maintaining bone and muscular health. The role of vitamin D in contributing to the development of fibromyalgia is thought to be rooted in its metabolic function. Vitamin D helps in the synthesis of parathyroid hormone (PTH) in the body.

The parathyroid hormone serves to extract phosphates, especially calcium phosphate, from the bones. Combined with other factors, a failure to extract adequate amounts of phosphates from bones can lead to fibromyalgia. In case of vitamin D deficiency, the body is depleted in parathyroid hormone and hence an abnormal retention of phosphates in the bones may initiate a march toward symptoms of fibromyalgia.

Sunlight, Fibromyalgia and Vitamin D Deficiency

One linking factor of significance in the connection between fibromyalgia and vitamin D deficiency is a person’s exposure to sunlight. Vitamin D forms in the skin upon exposure to sunlight for about 15 to 30 minutes. Limited exposure to sunlight on account of climatic factors, lifestyle, skin color, or any other reason, can result in vitamin D deficiency in the body, even when a normal course of nutrition is followed.

The connection between fibromyalgia and vitamin D deficiency lead health experts to bear to believe the small quantities of undefended sun exposure could be useful for health. Since fibromylgia grows slowly but surely in excess of many years, it is reasonable to minimize the use of sunscreen when out on a fairly bright day and change a totally sun-protected lifestyle. If you need more information, please explore links on this Fibromyalgia Consultant site.

 

Disclaimer: Any views or opinions expressed in this article are those solely of the author/writer  and do not necessarily infer endorsement by the FMS Global News Desk.  Any advice or recommendation of a medical or legal  nature, or regarding exposure to sunlight without sunscreen protection, must always be discussed with a qualified professional.  FMS Global News cannot be held responsible for omissions and/or errors.

MAY 12 – WORLDWIDE FMS AWARENESS DAY

by Jeanne Hambleton Copyright 2009

 May this 12 May blossom into a wonderful year

Somehow I just could not let today pass without making some effort to celebrate International  Fibromyalgia Awareness Day together with others who suffer chronic pain and long term illnesses.

We constantly strive to raise awareness about this chronic condition  but my thanks must go to Tom Hennessy who lives in the States and is now bedridden, for  launching this annual event. Hopefully around the country in the UK and possibly worldwide people with fibromyalgia will be doing their darnest to bring the invisible disability to the attention of the public.  Fibromyalgia has been described as more common that rheumatoid arthritis and often more painful.

While in the States, who proclaim a worldwide epidemic of FMS  is upon us,  there are something like 6 to 7 million folk suffering with fibromyalgia – here in the UK it is said 2.7 million people have  this condition. Has the epidemic started here at home  I wonder? Considering the vast different in the population  our number is very high –  I am told one in 50 people. 

Regardless of this high number let me reassure those who  are feeling down and full of despair, that there is light at the end of the tunnel. A huge army of volunteers are fighting daily battles to raise awareness, shame our government into giving  us funds for research to find a cure and the cause and FMA UK  are spreading the word on a regular basis. 

We are trying hard to move mountains – maybe with a bit more help we might be moving them a bit quicker. 

But we should remember this  May 12 as being a few days after the first ever  historic debate about fibromyalgia  in the House of Commons. There were some fine words spoken by  a few MPs who made the effort  to  be in the House at 9.30am to  back Rob Wilson MP (chairman of the All Party Parliamentary Group for Fibromyalgia) who  had secured a debate to consider support for the people who have fibromyalgia.

Rob Wilson’s opening speech was very detailed and covered many issues relating to  this rotten condition. Anne Milton MP, Shadow Minister, Health, and Norman Lamb MP, a member of the APPG for FMS,  provided great support for the call for to help those with fibromyalgia. They had done their homework and certainly knew quite a bit about our condition. 

In spite of the magnificent  backing from a small group of MPs, the Minister, Ann Keen,Parliamentary Under-Secretary (Health Services), Department of Health, gave no firm assurances that she could give her full support the plea for help. She did however point out where information on FMS was available on NHS websites although it was reported earlier that NICE has declined to consider providing guidelines on fibromyalgia finally after almost two years wait. This is the time it took for NICE to reply to a request from FMA UK

Although Ann Keen described herself as a  health professional (a former  community nurse) it appeared her hands were tied. On a positive note she did suggest, “Everyone of us wants the best for those suffering from that chronic, distressing, uncomfortable and painful condition,” but she made no commitments. She stated  the debate could be the start of important dialogue with the two  APPGs for FMS and Chronic Pain.

Hansard reported the Minister suggested that  ”…setting NHS must-dos is not easy…The Department of Health must be sparing in setting those priorities centrally because of the criticism that we often receive when we attempt to do so. I know that everyone in this Chamber is here in good heart, but it is important to put it on the record that if we were to keep giving the NHS priorities, my list, let alone those of the rest of the ministerial team, would be long.”

To read a comprehensive report of the debate  log on  http://fmsglobalnews.wordpress.com/2009/05/09/mps-call-for-fibromyalgia-education-for-doctors-in-first-ever-fms-debate-in-uk-parliament/

and listen to the debate (75 minutes approx.)  log on to

http://www.fibromyalgia-associationuk.org/content/view/385/1/

You may already know that in March the Chief Medical Officer of the Department of Health, Sir Liam Donaldson, in his annual report for 2008 highlighted the problems surrounding chronic pain. 

 He pointed out, “Every single day, millions of lives are ruined by long term pain. Chronic pain is common and is getting commoner. People of all ages are affected, from children to older people. Pain left untreated can eventually become untreatable.”

He added,”Chronic pain is devastating for sufferers and their families. Children with pain do worse at school. They have more mental health problems. Half the adults with chronic pain struggle to walk, drive or even sleep. A quarter will lose their jobs. Quite simply, pain ruins lives.  The costs to our economy are enormous. Over half a billion pounds is spent annually by the NHS on pain medication alone.

 ”Pain is too big a problem to ignore. Yet it seems we have not been paying it enough attention. Patients say they are rarely asked about their pain by doctors or nurses. When they are asked, the treatment they receive is often inadequate. Many patients with pain are not getting any medical help whatsoever. Modern pain treatment can allow people with chronic pain to get their lives back. Medication is an important part of this. Other treatments such as electrical stimulation, acupuncture and psychological methods can be important as well. Patients can learn from professionals, and from other patients, how to recover. These services and more should come together in a modern multi-professional pain service. This has been shown to make a big difference to patients’ lives.

“Unfortunately, services are variable around the country – both in primary and hospital care. Only 14% of sufferers have seen a pain specialist. In fact, there is only one full-time pain specialist for every 32, 000 people with pain. Improving the quality and availability of services would benefit the lives of millions of people. In this chapter, I recommend changes to the way we deliver pain services in this country. We must start to routinely ask patients about their pain, record the information, and use it to improve services further.

 ”Wherever pain services have already been reformed, it has made life better for thousands of people. Change on a national scale can make life better for millions.”

I recently heard that   Ann Begg MP,  the lady who fought so valiantly in the House, but sadly unsuccessfully,  to stop  the co-proxamol withdrawal is the chairman of the All Party Parliamentary Group for Chronic Pain. I wish her much success.  Let us hope  this APPG might be influential in changing  the listing of co-proxamol to a controlled drug like morphine. Then  GPs could  prescribe  this wonder pain killer that so many of us have relied upon for pain relief,  to named patients without fear of litigation. Let us hope  that talks between the two Groups  might prove beneficial to  all of those who suffer chronic pain including the fibromites. 

Perhaps I should remind you  of the words of Pam Stewart, chairman of the trustees of FMA UK and vice president of the European Networks of Fibromyalgia Association, “We have a fight on our hands.”  So yes there is still work to be done. Keep up the pressure on your MP. The MP is vunerable  right now and should be listening to your requests for support as he will thinking it could win him votes.  Press your MP for funding for research and maybe  May 12 as Fibromyalgia Awareness Flag Day. 

Do remember  when  writing to your MP or sending a reader’s letter to your local newspaper, that  Fibromyalgia IS REAL, it is not a murky illness.  It does relate to our quality of life and it is a huge financial burden on the family. There are 2.7 million people  with FMS in the UK, mainly women and stress is a primary trigger.   With a worldwide epidemic looming, this number could increase dramatically. Action is needed now- not when it is too late.  Take care and think positively – we must have hope. Jeanne

 

Sources include Hansard and theyworkforyou.com

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